We are delighted to announce that the King’s Health Partners Rare Disease Network will be hosting an exciting event on Friday 6 March 2026 titled:
“Demystifying the connection between patients and researchers”
KHP Rare Disease Network Patient and Public Involvement and Engagement (PPIE) Event 2026
Friday 6 March 2026, 12pm – 4:45pm
The Great Hall, Strand Campus, King’s College London, WC2R 2LS
Programme and registration details here
Join us for a half‑day event exploring how patients, researchers, clinicians and industry partners can work together to drive inclusive, impactful rare disease research. Hear real stories, take part in discussions, and connect with others working to build equitable research partnerships.
Programme highlights: presentations, high tea reception with poster displays, and expert panel discussions.
Call for Poster Abstracts
We invite submissions for poster presentations at our Rare Disease PPIE Event. Posters should showcase work that strengthens patient and public involvement, co‑production, and translational research in rare diseases.
Themes may include:
- Innovative approaches to PPIE in rare disease research
- Co-design with patients and families
- Ethical, social, or practical challenges in PPIE or translation
- Success stories and lessons learned from collaborative projects
- Methods and tools for effective engagement
- Translational research in rare conditions
- Industry partnerships for patient benefit
Who can submit?
Researchers, clinicians, patients, carers, advocacy groups, students, community organisations, and policy partners.
Submission details:
Abstract length: up to 250 words
Deadline: 9 February 2026
Notification: 16 February 2026
Poster format: A1 portrait (displayed at the venue)
Submission & enquiries: KHPRareDiseaseNetwork@kcl.ac.uk
All presenters will receive a certificate of participation, and poster prizes will be awarded on the day.
We warmly encourage you to submit your work and share this call with your networks. We look forward to welcoming you on 6 March